Many people think people with lupus are just lazy....

Tuesday, October 4, 2011

Dr appt 2day & thurs! I use 2 trust specialist & really thought they knew what they were talkin about! Since i was diagnosed with discoid lupus & have a ton of other symptoms, but not "enough" symptoms/problems according to their criteria....i have begun 2 think Drs r not as intelligent or knowledgeable as i once believed!

Friday, August 12, 2011

Toooo much sun 2day...all 4 the luv of my sweet 7 yr old. But now i feel like i was hit by a truck!

Thursday, August 11, 2011

Day packed wit dr appts!!! Happy day off 2 me! Let me jus explain sumthin & this mayb TMI...but PMS & lupus r not friends!!! Lupus flares r a definite event when havin PMS!! Why, why, why?!?!?!

Saturday, August 6, 2011

Charlie horse in my toes!!!!! WHY?!?! & it keeps coming & going!!!

Thursday, August 4, 2011

Fatigue, fatigue, fatigue!!!! Pain in my wrist!!! Drs appts next week.....same stuff different day/week....

Tuesday, June 21, 2011

Pain, pain, pain!! Why is my neck/throat soooo sore?! Normally i would take motrin/ibuprofen 4 this type of pain, but since i cut back on my motrin use because of abnormal labs, guess i have 2 pray this xtra strength tylenol works! *sigh*

Wednesday, June 1, 2011

Sooooo much leg is killin me.....weird pain, indescribable!!! It doesnt seem like itz gonna stop hurtin anytime soon....

Saturday, May 28, 2011

Joints hurtin...been doin too much lately! Rippin & runnin, rippin & runnin....too much...causin me fatigue...pain...lupus flare! Gonna go 2 bed early & start rippin & runnin all ova again in the am! As my life turns & does back flips!

Thursday, May 26, 2011

I am having what we would call a "lupie" day!!! I jus t dont feel good @ all!! :(

Friday, April 29, 2011

Wow. Been awhile as usual! Trying 2 figure out why my finger tips (cuticle area) r bright red & swollen?! Not painful though, so i'm grateful 4 that! But it is ugly!!! This whole process is annoying! Geuss i should go & see the rheumatologist like i'm suppose 2, but i think i have made my feeling clear about all these doctors!...they r getting on my nerves, bcuz they don't have answers 2 my questions (usually)! Ugh!!!!

Tuesday, March 22, 2011

Been a long time btween posts! Soooo busy all the time! Being a mom, being a nurse, doing work 4 God, thinking/planning on moving soon, mayb gonna start a new job search & sumwhere in there trying 2 find time 4 me!! The latter doesnt happen nearly enuff! I'm getting 2 the point of exhaustion, overwhelmed & just plain ole whipped! Prayerfully, i will b able 2 rein in my stress level, so i dont get thrown in2 a lupus flare! Wow. As my life spins near the level of out of control.......

Friday, February 4, 2011


Tuesday, February 1, 2011

PAIN!!!! hips, back.......PAIN!!!

Friday, January 28, 2011

Not feelin 2 good last few dayz! I had run out of my blood pressure med about a month ago & i couldn't get it refilled because my Dr moved & was no longer my Dr. (i would never advocate sumbody not taking an important prescribed medicine!) as i waited for my appt with my newly found physician, i monitored my blood pressure 2 make sure nothing crazy was goin on. What i did notice was my Raynaud's symptoms were worsening! I hadn't realized how much they had improved since i started the blood pressure medicine! So i finally saw my new dr this past Tues & re-started my blood pressure med....but i have had a severe migraine & i'm still not feelin quite rite yet....body adjustment phase after starting blood pressure med? Idk, but i'll keep an eye on my world flip flops & thrashes back & forth in pain!

Wednesday, January 26, 2011