Many people think people with lupus are just lazy....

Sunday, February 28, 2010

Well, well, well! Itz been a long time since i've blogged. 4 sum reason i've been incredibly busy & when i wasn't busy i wasn't feeling well. But i'm @ the lil one's swim class so i have a few mins 2 blog!!!
The last time i blogged i was on my way 2 have a virtual physical! It was a success, simple easy & i didnt struggle w/ my claustrophobia 2 badly. Itz like have a full body CT scan if you've ever had a CT scan. They gave me a coupla things 2 follow up on. The purpose is 2 scan ur body 2 find any potential problems so that they r caugh early, early enough 2 be corrected. But my overall scan was fairly good no life threatening potential problems! Yay! This last week has been difficult mentally & physically!! A dear friend of mine lost her 16 yr old son, he collapsed all of a sudden after running a coupla laps around the track. I have such profound sadness 4 her & her family. I have tried 2 be there 4 her in every way thru this by planning the funeral. This is something she is not capable of doing emotionally & has no previous experience with. Unfortunately i have lost several loved ones so i do have experinece with planning funerals. So the least i could do was 2 help her family in that way. But, it did take a toll on me emotionally & physically. I havent been sleeping well! Fatigue is definitely not my friend! So, i had a migraine 4 3 dayz. Absolutely awful. Light sensitivity, nausea, pain. It is much betta 2day. But now i'm havin sinusitis issues. There's snow on the ground but the pollen has started, i've been gettin my email pollen alerts, so i guess i can attribute my sinusitis 2 the pollen? I dont know, but what i do know is my throat is awfully sore from postnasal drip!!! Claritin D is my friend rite now ;-) oh i almost 4got my dr started me on blood pressure medicine!!!! I was not happy about this but i had no choice bcuz i had been monitoring my BP 4 awhile & it was not getting better. Unfortunately several meds i take 2 manage my problems & symptoms cause high BP! Cyclosporin 2 depress my immune system so my immune system will stop attacking me....side effect ...high BP! Ibuprofen (motrin) that i take 2 manage my chronic pain....side effect.....high BP!!! Whatz a girl 2 do?!?! I know what i need 2 do......start exercising!! Now how can i work that into my busy life schedule?!?!?! Tune in next time 2 "as my life turns!" lol 2/28/10

Friday, February 5, 2010

Hello all. It's wear red day 4 women & heart Yesterday i had a decent day. Minimal pain, good day @ wk, good evening with my hubby & littlest 1. Did sum shopping 2 get my supplies 2gether so we can be ready 4 a long snowed in weekend. I really wish i had purchased a sled bcuz they r nowhere 2 be found now!! ;-)
Otw 2 have a virtual physical....... Decided 2 take the train bcuz i have no intention 2 be stuck on the beltway when the snow starts 2 fall & these fools start acting like....fools!! That being said, i'm getting in sum exercise 2 day...walking. That's 1 of the perks 2 taking the metro! But i'll be taking ibuprofen 4 sure 2day bcuz my hips were already hurting b 4 all this walking! So i'll check back in later & let u know if this virtual physical is all thatz it claims 2 be!!! Peace b safe!

Tuesday, February 2, 2010

Hey everybody, i started this day with a positive attitude, determined 2 have a good day. Not pain or problem free but positive. Satan thru a rack of hurdles in my way but i cleared them all (i think), despite slightly painful legs! ;-) i woke up with minimal sysmptoms (i took ibuprofen b 4 goin 2 bed). No pain worth speakin of, only fatigue. So the day started well. It has ended pretty well 2 even though i had 2 take ibuprofen).
By the end of 2 day my fingers were stiff & numb. The normal coolness in a office doesnt bother most people, but it causes my raynaud's phenomenom, therefore i have pain. Of course sumone suggested i wear gloves in situations like that! Yea right! I dont see me doin that @ work! It's bad enough that i have 2 wear gloves 2 get thru my grocery shopping bcuz of the freezer/fridge section!!!! I'm a lil 2 vain 2 have 2 go thru crap!!! It allllllll sucks!!! Every last symptom or problem sucks!!!!!
There was a time where i had chronic skin rashes/itching!!! Nothing the dermatologist did helped. It got 2 the point that i would have a flare every month so bad they had 2 put me on prednisone! ( a horrible drug) ginally my allergist came up with a solution......suppress my immune system so it will stop attacking me!! Wth?!?! I dont want 2 take that crap! But after 1 more flare up i warmed up 2 the idea! So approx 6 mos after starting the treatment....i hardley eve itch! Sumtimes i like my Drs. I still hate all this crap!!!!!

Monday, February 1, 2010

Ok. Almost done with my work day. Yay! It was a pretty good day overall, even though i couldn't make all the way through without ibuprofen. Pain isn't completely gone but it's a lil more tolerable. Now i'm hoping for a good evening. Peace
Good morning all. i'm determined to have a good day 2day! ;-) 1st woke up a lil late as usual. It's very difficult for me 2 wake up on time. I have sysmptoms of chronic fatigue, so even after 8 hrs of sleep (which i rarely get) i still wake up tired as if i didn't sleep long enough. But, thankfully i arrived to work safely & ONTIME! Yay! But 4 sum reason walking is very painful 2day. My shins hurt like sumbody hit em with bats. & my fingers are very stiff. But the show must go on. Let me get started on my work. Mayb i'll talk 2 ya'll later.