Many people think people with lupus are just lazy....

Tuesday, March 30, 2010

Well the Lil 1 is on spring break so she's on a different type of schedule this week. Mon-wed @ home w/Daddy, so that allows me a lil free time in eve, when i'm not breaking speeding laws 2 pick her up. So i have time 2 do some much neede pampering, i.e. Mani/pedi, visit my loctician! I was sooo tired though, that i almost didnt go 2 get my mani/pedi, but i forced myself & it felt soooooo good! Now i'm under the dryer gettin my locs maintained, i luv havin my hair washed (by sum1 other than me)! I feel lighter on my feet when my beauty is maintained! Now o course thatz a 2edged sword, bcuz that's 1 of the issues w/ people who have lupus...we don't "look" sick, so people dont understand when we constantly complain about pain, fatigue or anything else! They think we jus like 2 complain or we're lazy or anything else they can think of! Sorry i "look 2 good" 2 be sick, but i am!

Wednesday, March 24, 2010

Blessings flow down on me!! BP was excellent bcuz of my new med of course!! Now i wish there wuz a pill 4 my painful swollen lips! I alwayz struggle durin these dayz of longer sunlite. The sun is usually beamin in on me via my front windshield causing me all kinds of skin distress!!! :-(
@ dr offc 2 day 4 a BP check! It betta b good news! Lol

Wednesday, March 17, 2010

Praisin God that i woke up this mornin. I went 2 bed with A LOT of pain, but i woke up with minimal pain! So letz see where this day leads.....

Tuesday, March 16, 2010

Wow. My knees started bein swollen & reddened last nite!!! Now i have 2 investigate wut could b causin that! Systemic Lupus does cause those symptoms, but of course me "wonderfully, efficient" Drs have not diagnosed me w/systemic lupus, only discoid! Funny how i keep having SLE(systemic lupus erythematosus) symptoms but no diagnosis! Mayb it's the new blood pressure med? As my world turns 2 b con't.....

Thursday, March 11, 2010

Pain, pain, pain!!! My back, shoulders & neck hurt!!!! I barely have the energy 2 get the Lil 1 ready 4 bed! Thankful that she's old enuff 2 do sum stuff 4 herself!!! Smh why me?!?!