Many people think people with lupus are just lazy....

Tuesday, June 29, 2010

Knees warm & swollen......smh

Thursday, June 24, 2010

Tired, nauseous, shoulders hurt!! Another day in the my life.....

Sunday, June 20, 2010

Why do mornings have 2 be soooo rough?! Stiffness, pain & i wake up tired!!!!! Smh

Saturday, June 19, 2010

Hey everybody, sorry it's been awhile....i've been aight! Well pretty much aight in comparison 2 other times. I have a lot going on in my personal life, but my physical life has a lot of ups & downs. I have pretty much followed up on with all of the specialists. The only 2 things I haven't followed up on is getting the MRI of my head (2 see if there's a reason 4 the freq headaches) & I should really be under the care of a Rheumatologist. Now a Rheumatologist is the doctor that most lupus patients see to manage their disease. This is a very sore subject w/ me bcuz no rheumatologist will diagnosis me w/systemic lupus. Don't misunderstand my frustration....i do not Want to be diagnosed w/Systemic lupus! I have a diagnosis of Discoid lupus, that's bad enough. But, it is awful having a lot of symptoms/problems but not having a diagnosis to explain why all the problems r there. I have painful joints, chronic fatigue, chronic mouth/nose ulcers, symptoms of raynaud's....all being symptoms of systemic lupus.....but no "organ" problems (thankful 2 God 4 that blessing)....therefore no official diagnosis of systemic lupus. Hence, the reason why i'm not rushing to go & see a rheumatologist......they r not gonna tell me anything new!!!! so i tend 2 figure what is the point of seeing them?!?!?!?! Well, guess we'll all have 2 wait & see if i see that particular kind of dr!!! As my world turns & twists & tumbles..........

Thursday, June 10, 2010

Ooooh i 4got...i'm nauseous 2!!! GN
U kno what?!?!?! Anything i was suppose 2 do 2nite won't b done!!! Im sleepy, my lips r swollen, my back & neck i am going 2 bed & i never get in the bed early!!!

Wednesday, June 9, 2010

Swollen painful lips, mouth ulcers AGAIN!!!!!! Hate it!!!!!

Saturday, June 5, 2010

Jus did the race 4 the cure!!!! Omg! My how it's grown!!! I luv the cause & i luv 2 support causes but j think i'm gonna sleep in 4 the cure next yr!! I am pooped beyond pooped!!!!!