Dr appt 2day & thurs! I use 2 trust specialist & really thought they knew what they were talkin about! Since i was diagnosed with discoid lupus & have a ton of other symptoms, but not "enough" symptoms/problems according to their criteria....i have begun 2 think Drs r not as intelligent or knowledgeable as i once believed!

Toooo much sun 2day...all 4 the luv of my sweet 7 yr old. But now i feel like i was hit by a truck!

Day packed wit dr appts!!! Happy day off 2 me! Let me jus explain sumthin & this mayb TMI...but PMS & lupus r not friends!!! Lupus flares r a definite event when havin PMS!! Why, why, why?!?!?!

Charlie horse in my toes!!!!! WHY?!?! & it keeps coming & going!!!

Fatigue, fatigue, fatigue!!!! Pain in my wrist!!! Drs appts next week.....same stuff different day/week....

Pain, pain, pain!! Why is my neck/throat soooo sore?! Normally i would take motrin/ibuprofen 4 this type of pain, but since i cut back on my motrin use because of abnormal labs, guess i have 2 pray this xtra strength tylenol works! *sigh*

Sooooo much pain......ooooouuuuucccchhhh....my leg is killin me.....weird pain, indescribable!!! It doesnt seem like itz gonna stop hurtin anytime soon....

Joints hurtin...been doin too much lately! Rippin & runnin, rippin & runnin....too much...causin me fatigue...pain...lupus flare! Gonna go 2 bed early & start rippin & runnin all ova again in the am! As my life turns & does back flips!

I am having what we would call a "lupie" day!!! I jus t dont feel good @ all!! :(

Wow. Been awhile as usual! Trying 2 figure out why my finger tips (cuticle area) r bright red & swollen?! Not painful though, so i'm grateful 4 that! But it is ugly!!! This whole process is annoying! Geuss i should go & see the rheumatologist like i'm suppose 2, but i think i have made my feeling clear about all these doctors!...they r getting on my nerves, bcuz they don't have answers 2 my questions (usually)! Ugh!!!!

Been a long time btween posts! Soooo busy all the time! Being a mom, being a nurse, doing work 4 God, thinking/planning on moving soon, mayb gonna start a new job search & sumwhere in there trying 2 find time 4 me!! The latter doesnt happen nearly enuff! I'm getting 2 the point of exhaustion, overwhelmed & just plain ole whipped! Prayerfully, i will b able 2 rein in my stress level, so i dont get thrown in2 a lupus flare! Wow. As my life spins near the level of out of control.......

PAIN.....still!

PAIN!!!! hips, back.......PAIN!!!

Not feelin 2 good last few dayz! I had run out of my blood pressure med about a month ago & i couldn't get it refilled because my Dr moved & was no longer my Dr. (i would never advocate sumbody not taking an important prescribed medicine!) as i waited for my appt with my newly found physician, i monitored my blood pressure 2 make sure nothing crazy was goin on. What i did notice was my Raynaud's symptoms were worsening! I hadn't realized how much they had improved since i started the blood pressure medicine! So i finally saw my new dr this past Tues & re-started my blood pressure med....but i have had a severe migraine & i'm still not feelin quite rite yet....body adjustment phase after starting blood pressure med? Idk, but i'll keep an eye on it...as my world flip flops & thrashes back & forth in pain!

HEADACHE!!!

wow. my fingers & hand are REALLY hurting. this is new. i haven't had this kinda pain b4. itz not just stiffness, it really hurts. i've been staying away from ibuprofen products, but idk if i can go without it 2day!

Happy New Year's Eve Eve! Christmas came & went! Alot of hype 4 jus 1 day! I heard sum1 say Christmas needs 2 be a 3 day event/holiday! I agree. Bcuz there is alot of hype leading up 2 1 day & then itz over! I usually have such profund sadness the day after Christmas bcuz of the letdown after all of the building up, but this yr was very different...bcuz i was soooooo broke this yr I didnt have any building up, so there was no letdown! I was sad leading up to & during Christmas. But yay itz over. Now time to ease jnto a new year. Ease i say! We'll see about the ease part. Idk how that story is gonna b written. We'll have 2 wait & see. Well gotta go...gotta lot of bilateral finger/hand/wrist joint pain! Ouch!

New place 2 live, new job.....& of course.....new problems! But i have 2 hold on 2 the belief...."that all things work together for good to them that love God, to them who are the called according to his purpose." im tryna decrease stress 2 help manage my disease & in sum wayz it has been decreased, but the stress also changed 2 different stressors! So 4 now, physically i've been doin aight, no major symptoms goin on, so i con't 2 b blessed! I hope every1 has a very Merry Christmas as we hopefully focus on the reason 4 this season & NOT get caught up in the hype of commercializm! Thatz an easy focus 4 me this year bcuz i'm broke! Lol. Gotto go & see how life turns out as my world spins....

Wow. Itz been a lonnnnng time since i blogged! My life has been sooooo hectic lately! I moved (temporarily), changed jobs (started this past Mon), i' still the adventurer leader @ my church & the kids graduated 2 move on to their next class! Just so much going on! I hope everything works out with this new job bcuz it cuts my commute down by 1-1/2hrs! Whew! As far as the lupus....i still have my crappy moments....but im blessed....it could b soooo much worse! I had sum type of allergic/hypersensitive response about 2 wks ago. Idk know what i was having a bad response 2.....thatz the difficult part. Since idk what caused the problem, i cant avoid it, so i never know when/if it'll happen again! I was in bad shape! Fever/chills, difficulty breathing, i thought i was leavin this earth! But as usual God saw me thru! Im still here. Praise Him! Til next time as my world turns/spins & does back flips......

Ulcers in my nose!!!! Sooooo painful!